After 39 weeks, Luisâ€™s surgery and chemotherapy programme finished on the 24th March 2014. Two weeks later we returned to hospital to undertake some end of treatment scans.
The results have unfortunately identified a secondary tumour growing within Luisâ€™s left lung. This is commonly known as secondary cancer.
Luis will shortly undertake some further tests to see if his cancer has spread anywhere else within his body. If not, then we proceed very quickly to surgically remove the tumour from his lung followed by strong chemotherapy; a maximum of 6 treatments over an 18 week period.
At this time I have no further news as weâ€™re waiting for appointments and meetings to be arranged via the London oncology team supporting us.
UPDATE 1 from Luis's Dad:
On the 9th September 2013 Luis had surgery to remove 15 centimetres of his upper right fibula, the tumour and unfortunately his peroneal nerve that controls movement in his right foot. This means that Luis has now what is more commonly known as â€śdrop footâ€ť and has to wear a leg splint to help him walk and also a brace when he sleeps to help keep his right Achilles heel and calf muscle in good condition.
Only 2 weeks later Luis was back at the University College London Hospital to continue with his next phase of chemotherapy which is scheduled to take approximately 20 weeks to complete. Luis has physiotherapy sessions to help strengthen and increase his lower and upper leg muscles which is critical in ensuring a good recovery from his next surgery planned for late 2014 which aims to regain some mobility.
Luis has experienced some low points during his treatment which has resulted in additional stays in Northampton General Hospital; special thanks must go to the staff and nurses who work on the Disney ward who have made sure his time there has been as comfortable as possible.
Through sheer determination and positive attitude Luis continues to rehabilitate well but still has a considerable way yet to go. Weâ€™ll keep you updated with Luisâ€™s progress here on this website and you can also receive messages via his twitter account @lu15fundraising
Thank you for reading
Luis with Dylan Hartley
This website was set up in July 2013 by the friends of Luis Ghaut, his parents Lee and Jo, and his sister Georgia is response to Luis being diagnosed a month short of his 12th birthday with an Osteosarcoma (a rare bone cancer) of the fibula in his right leg.
Children identified with having an Osteosarcoma are typically ranged between the ages 8 â€“ 16 as rapid growth of the bone plates may be one reason why this type of cancer materialises. Most cancer tumours develop in the bones around the knee, either in the distal femur (the lower part of the thigh bone) or the proximal tibia (the upper part of the shinbone), with the proximal humorous (the part of the upper arm bone close to the shoulder) being the next most common site. However, Osteosarcoma can develop in any bone, including the bones of the pelvis (hips), shoulder and jaw - this is especially true in older adults. Initial symptoms are swelling and pain which is very similar to a fracture or even a muscle tear. Due to the rarity of this condition it is often difficult to identify and the swelling (tumour) usually is the first real identification that something is wrong. If symptoms persist, or if you are in any doubt, please insist your GP refers you to hospital for an x-ray.
Luis has been receiving his initial chemotherapy at the University College Hospital London and will shortly undergo surgery to remove the tumour and affected bone structure. Post surgery Luis will continue for a further 20 weeks of chemotherapy and then reconstructive surgery to regain as much mobility as possible. Luis will receive constant monitoring for the next 10 years but in the meantime with the help and support from his family, friends and you we are confident Luis can beat his cancer.
This website and logo Lu15 was inspired by a combination of Luis's Mum and Dad calling him Lu, and his favourite position being full-back, number 15. The colour scheme of the logo comes from the Northampton Old Scouts RFC club colours who Luis and his team mates have been playing for every weekend since they were all six years old. As soon as we heard of Luis's illness we knew we had to do something to support Luis in his battle. Our primary aim is to help raise awareness of Osteosarcoma by organising some fundraising events and once Luis's treatment is finished, and if funds allow, to also send Luis and his family on a holiday of a lifetime next year.
The three main events are as follows:
Golf Day â€“ to be held at Collingtree Golf Club on Friday 2nd May 2014. There will be 18 teams, arrive at 10am for coffee and bacon rolls, with a shot-gun start at 11am. Dinner will be served at Greens restaurant afterwards. The price per team is ÂŁ300, but I am sure we will have a few mixed teams so individuals are welcome to book at ÂŁ75 per head. During the day there will be several competitions, such as Longest Drive, Nearest the Pin, Beat the Pro, Putting competition.
Northampton Lift-Tower Abseil â€“ to be held on Saturday 21st June 2014. We have managed to exclusively book the tower for our group, with 50 places available. Cost per person is ÂŁ96.50, Lee and Jo have kindly agreed that the each participant should cover their own costs first, and therefore any monies raised over this amount then be donated to the fund. As it is just our group doing the abseil on the day, we can bring our own drinks, buffet etc to help make it a social event.
Gala Dinner â€“ to be held on Saturday 12th July 2014, at the Rodber Suite, Franklins Gardens. This will be a three-course meal, followed by an auction, band and disco. The local band Bush Pigs (including our own Marcus Briggs!), are headlining the event. There will be 35 tables of 10 people, cost is ÂŁ45 per head, so groups can book at ÂŁ450 per table, or individuals can book at ÂŁ45 per head. Dress code will be smart, summer clothing, not black tie. The gala dinner will be the climax of our fund-raising, so we want to make this night a hugely social and enjoyable occasion.
In addition, we are hoping to have a bag-packing session at a local supermarket, U13 rugby match v the local Alliance team, and several other events.
To help promote our activities and this website there are a limited amount of baseball caps and wristbands available. Awareness of this horrible illness is key, we are very grateful for all your support. If you would like to take part in Luis's events or if you would like to contribute in any way there is further information available at www.lu15.co.uk.
Thank you for your support.
A couple of Luisâ€™s friends â€“ Noah and Thomas, recently ran the 5k Pumpkin Run at Stanwick Lakes yesterday and took the opportunity to get some sponsorship for Lu15. They both ran really well and raised just over ÂŁ200 between them.